Meaningful Service User and Carer Participation: The Good, The Bad, and The Ugly

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Event type Live Stream

Webinar, via Zoom
09:30 - 13:00 UK time, 10:30 - 14:00 CET

pyschologist talking to teen girl
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‘Meaningful Service User and Carer Participation: The Good, The Bad And The Ugly’ will demonstrate how meaningful participation can be done well. This will involve perspectives from young people, parent/carers and those involved in facilitating participation.

Booking

Sign up at this link or on the Book Now button at the top of the screen, and complete the form that follows. You’ll then receive an email confirmation and a link to the webinar, plus we’ll send you a calendar reminder nearer the time. Delegates will have exclusive access to recordings for 90 days after the event, together with slides. Plus you will get a personalised CPD certificate via email.

  • ACAMH Members MUST login to book onto the webinar in order to access this webinar and get a CPD certificate
  • Non-members this is a great time to join ACAMH, take a look at what we have to offer, and make the saving on these sessions

£40 ACAMH Members (Print, Online, Concession, Undergraduate/Postgraduate, LMIC) Join now and save

£60 ACAMH Learn Account holders

£60 Non Members

£5 Undergraduate / Postgraduate Members

FREE for ACAMH Low and Middle Income Countries Members

Don’t forget as a charity any surplus made is reinvested back as we work to our vision of ‘Sharing best evidence, improving practice’, and our mission to ‘Improve the mental health and wellbeing of young people aged 0-25’. 

About the session

Participants will gain an understanding of the importance of meaningful participation, the benefits of quality engagement of young people and top tips for getting it right.

Who should attend

The event will be beneficial for clinicians, researchers and those involved in designing and delivering services for young people.

About the talks

Dr. Sadie Rodell, Katie Wren & Lucy Carr – Engaging Young Voices: Enhancing Quality through Co-Production with Young People
This talk will explore the co-development of a Patient and Public Involvement and Engagement (PPIE) framework and a Neurodiversity-Affirmative Language Guide created at the Young People’s Mental Health Research Centre within Pennine Care NHS Foundation Trust. We will discuss the significance of these co-produced resources in fostering meaningful participation and inclusivity for young people, particularly those from marginalised groups whose voices are often overlooked.

At the heart of our discussion is the value of the PPIE framework as a dynamic and live document that evolves through collaboration, ensuring that the perspectives of young people are effectively integrated into research and service development. We will highlight the co-produced neurodiversity-affirmative language guide, underscoring the critical role language plays in shaping positive interactions and experiences for neurodivergent individuals. Attendees will hear from the young people who contributed to the development of these resources, sharing their insights and experiences throughout the process and offering their advice for future PPIE initiatives.

Additionally, we will draw parallels between our work and the Co-production guide developed by the British Psychological Society (BPS) and signpost resources designed to enhance the confidence of professionals and researchers in engaging young people and families within PPIE initiatives.

By equipping people with practical tools and insights, we aim to promote greater inclusion of young people and families in mental health research and services, ultimately leading to improved outcomes and a more inclusive landscape.

Learning outcomes

  1. Understand the Importance of Co-Production (learning about the principles and significance of co-developing PPIE frameworks and resources, with a focus on fostering meaningful participation among young people, especially those from marginalised group).
  2. Recognise the Role of Language in Inclusivity (Attendees will explore how language might influences interactions and experiences for neurodivergent individuals, and how a Neurodiversity-Affirmative Language Guide can be utilized to promote positive and inclusive communication).
  3. o be able to Apply Practical Strategies for Engaging Young Voices: (Attendees will be equipped with actionable tools and resources to enhance their confidence in involving young people and families in PPIE initiatives, drawing from insights shared by young contributors and examples from the British Psychological Society’s co-production guide).

Programme

09:30 Welcome from Mark Bowers

09:35 The ARC Young Person Advisory Group – Reflections on the good, the bad and the ugly

10:05 Karen & Toni Lived Experience Participation: The Parent/Carer View

10:25 Aneela McAvoy and Sam Young – Getting the basics right

10:45 Break

11:00 The ARC Young Person Advisory Group – Video: Top Tips

11:10 Dr. Sadie Rodell, Katie Wren & Lucy Carr – Engaging Young Voices: Enhancing Quality through Co-Production with Young People

11:30 The ARC Young Person Advisory Group – The benefits of involvement for young people

11:40 Discussion with all speakers

12:30 Close

About the speakers

Dr Sadie Rodell is a Clinical Psychologist working within the Learning Disabilities and Autism CAMHS team at Manchester University Foundation Trust (MFT) and a Senior Research Fellow at the Young People’s Mental Health Research Centre at Pennine Care NHS Foundation Trust. Specialising in Child and Adolescent Mental Health, Learning Disabilities, and Autism, her work focuses on inclusivity in CAMHS service development and involving children, young people, and their families in mental health research. Sadie is passionate about hearing a diverse range of voices in research through co-produced Patient and Public Involvement and Engagement (PPI/E) initiatives, particularly in ensuring inclusive support for neurodivergent young people.

Lucy Carr

Lucy Carr is a Senior Research Assistant at the Young People’s Mental Health Research Centre at Pennine Care NHS Foundation Trust. Lucy has worked both clinically and in research across numerous areas including children’s mental health, adult psychotherapy and psychosis. Throughout Lucy’s work she has been passionate about ensuring service users and carers have a voice in services and the care they receive, and ensuring these opportunities are accessible to all.

Katie Wren

Katie Wren is a Youth Support Worker within the Young People’s Specialist Support Team in Radcliffe, Bury. She supports young people with learning disabilities and/or autism and their families. In her role she has focused on implementing neuro-affirming language to foster environments that are accepting and understanding of neurodivergence. Katie’s clinical experience and service development work advocates for incorporating the voices and opinions of expert-by-experience autistic young people into the service development that underpins the care they receive within CAMHS and the NHS.

Young People Advisory Research Group

The Young People Advisory Research Group (YPAG), established by the NIHR Applied Research Collaboration Greater Manchester in July 2022, is composed of 20 young individuals aged 16-24. Our members represent a diverse range of communities and backgrounds from across Greater Manchester, ensuring a rich variety of perspectives and experiences. This group plays a vital role in shaping our research agenda by providing valuable insights and helping to identify and prioritise key areas of focus. Through their contributions, we strive to align our research efforts with the needs of the local Greater Manchester communities through impactful applied research.

Booking

Sign up at this link or on the Book Now button at the top of the screen, and complete the form that follows. You’ll then receive an email confirmation and a link to the webinar, plus we’ll send you a calendar reminder nearer the time. Delegates will have exclusive access to recordings for 90 days after the event, together with slides. Plus you will get a personalised CPD certificate via email.

  • ACAMH Members MUST login to book onto the webinar in order to access this webinar and get a CPD certificate
  • Non-members this is a great time to join ACAMH, take a look at what we have to offer, and make the saving on these sessions

£40 ACAMH Members (Print, Online, Concession, Undergraduate/Postgraduate, LMIC) Join now and save

£60 ACAMH Learn Account holders

£60 Non Members

£5 Undergraduate / Postgraduate Members

FREE for ACAMH Low and Middle Income Countries Members

Don’t forget as a charity any surplus made is reinvested back as we work to our vision of ‘Sharing best evidence, improving practice’, and our mission to ‘Improve the mental health and wellbeing of young people aged 0-25’.